Just Checking in

So this round of Chemo and I are not exactly friends but not enemies! The first round I felt like nothing this time I'm just not 100% Its alot stronger and just makes me super sleepy..not sick but you know just not normal so today is day three and Monday thank goodness will be my last day this round then back to all the waiting!! Otherwise things are all good!!

Keep praying!! XOXOX

Im back at my first home away from home

Checked back in this morning at 7 am ...yuck.... just a day of tests blood work ultrasounds on my arms and a new picc line..

Blood work we get back tomorrow morning should be normal just my counts and all that good stuff!

Ultra sounds on my arms: my left arm is still totally clotted and the right arm was fine so the picc line went in the right arm no problem except Ive heard more times today that I have tiny veins well all I could think was these tiny veins better not reject this picc line.... I wasn't too fond of my picc line Dr. When he was all finished I could feel the picc line up in my chest which In my other two I had not felt it. So like I always do I started asking questions...like i have never felt that before is that normal will it go away and his answer was well if it bothers you that much then they can take it out but I think you should deal with it because you are running out of places to put it :( I'm like thanks for making me feel not even a tiny bit OK! But its in and I'm gonna pray it lasts!!!

So chemo starts tomorrow morning/afternoon at 11 and I will get it for three hours and then again at 11 at night every other day until Monday! Major side affect will be really dry and itchy eyes which I will get eye drops for the whole throwing up thing Ill get meds whenever I need them so that wont be an issue just like the last time!

The whole chromosome abnormality has disappeared... so I had it in the beginning  that's what the say caused the leukemia in the first place and that the chemo fixed the problem they are gonna run a DNA test to make sure!!

So I'm thinking that things could not be going any better!!

Keep praying!! XOXO

REMISSION

Well I have known since Wednesday but I wanted to be sure and wait until after my Doctors apt. this morning but I AM IN REMISSION! My bone marrow came back good and my blood counts are right in the dead center of normal! We are waiting on one more test that deals with my chromosomes and it just will determine what the next dose of chemo will be even tho he is pretty sure it will be a high dose of cyterbine (sp) two hours a day for three days..... the chromosome abnormality is just weather or not the leukemia can come back in the future and the reason why I had leukemia in my body is somewhere along the way chromosomes 8 and 21 switched places and that's how it happened. Anyways the one last test is to see if chemo might have corrected that!! So good news and hopefully I'm right on track to be finished with this the end of July beginning of August!!

XOXOX Keep praying!

So for those of you who don't know

I'm blogging to you from home!!!!!! I got to go home for  week!! I'm free until next Monday!!! Well that is my bone marrow results are all good or I might have to go back a few days early. I have to get blood work done on Thursday and I have a doctors apt. on Friday! Bone marrow was easy like last time its just the waiting and thinking about it! Worst part though is that they took the pick line out.... So when I get back Ill have to get a new one!! They say they can last up to 6 months but the fact that my first pick line failed they don't want to run the risk that anything would happen and I would not be in the hospital to take care of any problem . Oh well its nice to be home with out Christmas decorations hanging from my arm!!!! So I  wont be on the blog until Friday to update everyone on my bone marrow results!!!

XOXOX I still need everyones prayers!!

So I finally broke down and shaved my hair off....  Well I didn't break down I really had almost no pony tail left and what was left of it was one big knot so I just decided I'm done with this and chopped it all off!! And as I was chopping  away we had an earth quake pretty perfect timing if you ask me... its just crazy that it will be a month tomorrow and we have had more earth quakes and I feel them all in this month than we have had in a long time!!!! my counts are 13.8 and my platelets are climbing up super fast and its official just a couple of hours and I get the all dreaded bone marrow test!!!! But best news of all is that I got to see Roxie today!!! She was not nearly as excited as I was actually they only time she came near me was when I was giving her beef jerky yes I had to bribe her to come near me ...we had a moment she cried fora second and then I think she remembered I have left her for a month but I think when I get home she will warm up to me in no time...whether or not she was happy I was soooooo HAPPY!!!

XOXOX Keep praying!!!

8.0 and amazing friends

So my counts shot up to 8000 or 8.0 last night/today So I went off the neuprgen shot and I ll have the bone marrow Monday morning!! I Have to get an OK from my doctor but the Rn's say that it should be fine and they do it all the time but that I get to see ROXIE!! They will wheel me down and my parents will bring her over and I'm so excited to see her so hopefully it all works out!!!

But most of all I want to thank my great neighbors and amazing friends and family who stopped by put on or donated at the yard sale!!! Thank You!!! Thank you!!! Thank You!!! You all are AMAZING!!!!

XOXOXO Keep Praying!!

Ps

My counts should be around 9 or 10 thousand by Sunday  which is normal and its been along time since I have had a normal immune system..... Today at 2.8 I have what they call an immune system and they are taking me off two of the last three antibiotics..the one hey are leaving me on is the one that if I had pneumonia its what took care of it so until they are sure it was or was not pneumonia they are going to leave me on it..... now if only I cold drink liquids I would only be hooked up to an IV for 30 minutes a day for awhile instead of 24 hours and let me tell you its worth trying to drink liquids to get off this thing!!!

2.8

So thank goodness my counts finally made the jump because after how sore I was/am last night and today I don't know how much worse it could get!!! (all worth it though) So the Doctor was debating on doing the bone marrow in the middle of the night tonight or wait until next week ideally we would want to wait until next week because it would give my body a chance to get off the nupregen shot and get out of my system so that the bone marrow would be a true reading but after my blood work the past few days it looked like there were still blast cells which would not be a good thing  and  at 4 am tonight/tomorrow its about when my day starts anyways the bone marrow would be done.....until..... the pathologist came back with his report and said there was no reason to be concerned and  that any blasts reported were a result from the neupregen shot which is normal. Nothing is final until the bone marrow results come back and I still have more chemo  ahead anyways it just makes you a little nervous anytime they say you have reported blasts...I will say that when I came in the hospital I had 97% blast cells and the blood work yesterday only showed 1% so that's a big difference and today I have 0% blasts so I would like to think that if anything I'm in the right track!!!

Keep praying XOXOX

1.6..... my hair...... headache

So it looks like no bone marrow test until Monday!! My counts just are not moving up I'm at 1.6 today I need to be at at least 3 before the test and with my Doctor not in on weekends it looks like ill be here a little bit longer!! 

Bad headache today :( Don't know why probably just a headache.... and nothing else!

My hair is officially on its way out... half of its already gone... you wouldn't know by just looking at me by I sure know...or anyone who has seen the ball of hair I made.let me explain.... Its been thinning out but yesterday about half of it came out and so as I was sitting on the bed I just kinda rolled it in a ball when it would come out and it freaks everyone out I think its funny!! 

Keep praying xoxoxo

3 weeks!!!

My counts are still 1.2 today so they think this is where I might stabilize and then over night they will jump a couple thousand. They do bone marrow at about 3000 so I'm almost there and I think a trip home in the near future could be possible!!! (not getting my hopes up tho) Other than that I'm just hanging out!!!!

Keep praying XOXO

Slowwww couple of days

Nothing new!!! My counts are slowly coming up Im at 1.2 or 1200 which ever way you want to look at it...... still getting the nuporgen (told you I would spell it different everytime!) just waiting for it to really kick in!!   Happy Mothers Day to all you Mom's!!!!

Keep praying!!! XOXOX

No real new news!!

So the past few days have been pretty boring well kinda!!....... On Wednesday I woke up and my heart was pounding out of my chest and i was a lil jittery so I waited to see if it would go away or if any of the doctors or nurses would hear it..... nope they all say it sounds great and so on and so on...... well it got worse around 8-10 So one of my favorite Rn's was mine that night so she hooked me up to the heart monitor and said it sounded and look more normal than most hearts she has seen in awhile.... I was using this cream for my arm where I had my other pic line because I was allergic to the dressing and tape they used and I had a lil rash so  the cream had a steroid in it.... it was a long shot but maybe then we said well maybe its a lil anxiety..... both who knows but i felt good enough to fall asleep knowing that my heart was ok.... so yesterday morning my oncologist said it could be your body working hard to rebuild your cells and its probably nothing!! (but they did take me off that cream and give me one with out a steroid!!) Sooooo Hours later and my heart is still fluttering My infectious doctor comes in and says so I hear you have been having this and this and this I'm like yup!!! He says well it sounds like a side affect from one of the meds I have you on, I'm gonna get an EKG run to make sure your heart is ok but that that's prob what it is. SO the EKG came back perfect and Doc says unless the fluttering is totally bothering me its the best drug for me with the least of side effects and wants to keep me on it..... now that i know the EKG is normal I think I can live it it!!!!

My oncologist thinks my next bone marrow should be next Tuesday or Wednesday ekkkk But hopefully those cells are all healthy ones!!!

If anyone gets a chance to drive down my street my AMAZING neighbors through this have put up ribbons along with a ton of great things they are working on so thanks guys and I cant wait to come  home and see it!!!

xoxoxo keep praying!!

New Pic Line!!!

Wow it was like night and day!!!! Not even a single bruise on my arm and anyone who has seen the old one and the tiger stripe bruise the size of China will be shocked when they see the new one and the RN not even a Doc this time was so nice and it was just a way better experience!!! It was nice to be free for a couple hours yesterday with no iv though!!! My counts are all still very low and right when we thought they might stop dropping they dropped but its good because I never quite hit .0 the lowest was .6 on the second and I'm back at .6 now!!!! SO things are going well my infectious doc was just in here and they took another xray with the pic line and its still clear so keep your fingers crossed that this pic is here to stay well at least til hopefully August!!! And I just learned how to comment back on the blog comments to ill look into answering all those questions later!!! Keep praying XOXO

a tiny set back today

for me its major cause I didn't ever want another one of these things...... my body is rejecting the pick line which is in my arm for up to 6 months and you can do multiple iv lines and get blood from them so I'm not being poked every ten mins. my blood has clotted all the way around the line which goes pretty close to my heart and the risk for a stroke is too great....... I just hated getting it done because it stings like a mother and the bruise is the worst bruise ever...... but in the long run I'm glad I'm getting another one cause its sooooo convenient...... wish me luck! Ill let you know later how it goes..... keep praying xoxoxo

2 weeks today

So its been 2 weeks today and as much as it feel like yesterday It also feels like its been a lifetime!! Is that possible??? My biggest thrill of the day is who my RN is gonna be LOL!! My counts are still really low and expected to drop more which is normal.... A couple weeks on this neuprgen shot to help the white cells grow and then they take me  off the counts drop again and hope that the whites come back healthy on their own.... doc just asks how I'm feeling and says hes not gonna say anything in his funny lil personality!!!!

Mom wants to add a lil note here thanking everyone for the calls and emails and sorry she doesn't  write or call back she is only in he office long enough to get a lil work or try and get a lil work back and then shes right back here next to me!!! So thanks to everyone keep praying XOXO

Day 9

So they say I am in day 9 from when I started the whole process but really I have been in here for 13 days and I now know the true meaning of cabin fever!!! The shot they give me I feel like a 100 year old women when I wake up my bones and joints ache like no other!!!! Spent the day with Dad.... And anyone who  knows me know how much I love chicken strips my Mom found some pretty good ones that will be having again!!! Soooooo Yeah that's about it nothing new to report!!!

Keep Praying XOXOXO

No chemo and a sick day/night

You would think it gets easier.....no all and all it wasn't a bad day just takes alot outta ya i got the first nueprogen (sp) (and Ill probably spell it different everytime) and no side affects yet they say it makes your bones mostly like hips thighs ect where you produce the most bone marrow really sore and achey its an actual shot not through the iv so it works better that way I guess so we shall see!!! Had another chest xray today and its totally clear!! YAY!!! So the next ten or so days I can not I mean can not get sick or any infections so that's what I need everyone to hope and pray for that!!!

Aunt Mary and Uncle Morey I LOVED "seeing" you guys tonight!!!!

David Bek Kids and Chris Thank you thank you thank you I cant say it enough that basket was amazing!!!!

Keep praying XOXOXO