HOME Sweet HOME!!

Tomorrow is the big day!!! I get to go home!!! Would have been last Monday But I still could not hold anything down!! Counts are Amazing the best they have ben in two years and I ate my first mean of the month last night!! Just a little chicken but the family was all excited even half a piece is better that the not eating period for a month!! they took my off all Iv stuff about Wednesday!!! I'm so ready so excited and no GVH that we know of yet!!! XOXXO

update

Sorry Its been so long but I have been sooooo sick!! Not a day I take it back hour since I had started chemo have I not been throwing up.... Nothing helped.. We thought after the chemo left my system it would pass.... wrong.. they figurged out it was a reaction from the cyclosporon an ani reg drug ?? They were running it for 2 hours and I was just so sick I had not eaten in 8 days loosing weight and all the good stuff you don't want to happen!! Yesterday we finally got it under control and I'm feeling a little bit better!! Were running it over 10 hours with a 2 hour break and then 10 hours again and it seems to be helping! Transplant went as boring as it should lol I think my donor was a body builder they said it was the biggest bag of marrow they had seen in a long time!! So I had my first meal last night some soup and held it down thank goodness!!! Dr says all my labs are looking good!! Just waiting for the grafting to begin!! xo melissa

Terrible!!!

Well the chemo has caught up and it is horrible!!!! LAst night of this round is at 10 and then a couple more days of another! We switched some meds around and hopefully it clears up the naseua! I also started the anti reg. meds today and so far so good on those! XOXO Melissa

chemo

Well things got going a little quicker than expected they started the buslufin (sp) at 4 am pre meds at 3:30 so you can imagine not much sleep but its a hospital what more should I expect! I must say I was very very spoiled by My nurses and Dr at St Joes so this is tough trying to get to know people and them not really knowing much about my I think they think this is my first go around in the chemo dept..... & rounds later I know what works and doesn't for me and they have their ideas so its going take some time! I think they decided on a Picc line and when it clots in a week they will so another one and so on and so on so we will see how that goes! Other than that handling the chemo with no problems! XO Melissa

All Checked in!

Hi Everyone!! Im all checked in now!! They had to put it off a day since the donor marrow is coming form Germany (I didn't mind the extra day off at all) Chemo starts tomorrow after we figure out the picc line / Hickman figured out Im fighting for anything but a picc line since I have had 7 and not one has lasted longer than 8 days!! They all have clotted so we will see I'll let you all know tomorrow!!

XO Melissa!

Mom joined the club!

My Mom got a Tattoo!!!
Its the same word I have on my wrist she added the cancer ribbon symbol mine has a differnt symbol but anyways this word has a very speacial meaning to us and there a very I mean very few that know the actual meaning behind why we choose this word! But Im so excited she finally did it!

An update on the tranplant the dates got moved a bit and I go in a week from tommorrow and start chemo on the 29th and transplant date is April 5th!!

Transplant Date!

It has finally been set!! I check in the 24th or 25th of March... Depends on what we deicde to do with a central line. More than likely the 24th because it involves surgery and they want to start chemo on the 25th and then I will recive the transplant on April fools! Its going to come just about full circle if everything goes as planned I will be all finished with this mess just as I hit my 2 years of being Dx. I had quite a few perfect matches, which is great. I will try and blog as much as I can during the process. Im not posting anything on facebook and I ask that if anyone wants to leave a comment of any kind they can do so on this. I some how in this whole process got a little more private about things as I'm sure you might be able to tell from the lack of blog posts this time around. And while I have no problem talking about things if asked there are just some that I want to keep between my family and I. So any news or updates will be on here I just dont want the added pressure of my parents having to answer everyone via facebook or however else!! This round of chemo (no radiation needed) will be tougher than I have had to date so texting an emailing back.. not that I'm good at it anyways probably wont be happening!The Dr. expects the tpransplant process to be about 28 days ( Im expecting a couple weeks longer.. I know how my body works). So until then..... Thanks for everyones postive thoughts and prayers!